Reflections of A to Z Challenge April 2018

A few days after I had started blogging again, a blogger I follow posted her theme reveal for the April 2018 A to Z Challenge. https://promptlings.wordpress.com/2018/03/19/a-to-z-challenge-2018-theme-reveal/. As I read her post, I got excited because this Challenge sounded like a perfect way to develop the habit of writing every day. My life is less hectic now, and I felt there was really no excuse but to be consistent with my writing. I knew the exercise would help me to be more disciplined. I also enjoy and actually fare better, when I am working with a team or in a community. I thought this was perfect!

Without much thought to the process, I clicked the link and signed up. I did not post on all twenty-six letters, but I was glad that I was able to get as much done as I did. The A to Z Challenge April 2018 did serve its purpose for my personal goals. I have made blogging part of my daily routine. I didn’t get much feedback, but I did enjoy exploring other blogs. Because of my limited experience with blogging, I learned a lot from the different styles of writing, and of course, I enjoyed the creativity. It also encouraged me to take more pictures when I am out and about.

There were some issues that made the A to Z Challenge more demanding than it needed to be. The first was I was sick the first week of the challenge and the next week I was trying to catch up until I convinced myself that was not necessary. I breathed a sigh of relief and moved on. Second, my theme was broad and not clear – even to me. I chalk it up to the fact that I really had no clue what I was doing when I signed up, and I had no overall plan. Sometimes I felt like I was on Sesame Street trying to find a prompt from random words for the “letter of the day.” Somedays it was amusing to me as I sang … “the letter of the day is here…” in my head of course. I was able to come up with a post whether from my unfinished work or an idea that popped into my head while humming that tune all morning.

The only negative thing I can say is that for some reason I did not feel connected to the group. Perhaps I misread the instructions, and as I indicated I earlier, I didn’t understand the process. I tried to get back to the original page where I had signed up to review the instructions, but I could not find it. I did not understand it was a page outside of WordPress.com. I did not get the daily badges with a different letter each day. I still don’t understand much about the spreadsheet or how to post to a community page. I’m hoping this will get there.

Overall, there is no question that I would do it again. Thanks so much to the hosts for organizing it; looks like there was a lot more behind the scenes work than I realized. I’m hoping I can get things straight for next year. Looking forward to 2019. Lindi Roze

Mental Health stories of courage and resilience Part 4

Y is for the true You inside

This post is the last of the Mental Health stories that I will share in honor Mental Health Awareness Month. As I’ve written earlier, these are memories I carry with me from past experiences. I hope that in reading these snapshots, you can get a glimpse of the struggles for a person who lives with chronic and persistent symptoms of mental illness and from that glimpse, gain understanding and empathy. This mini-series resulted from the letter “Y” in April 2018 A to Z writing Challenge. If you’d like, you can go back to Part 1 and start at the beginning.

I met Margaret as I did many of my clients, in a state-run psychiatric hospital to be a part of discharge planning. As I had mentioned in my last post, Margaret was on the younger end of middle age. She had been married once and had a child, a boy named Shaun. The boy’s father had full custody. Margaret had not seen her son, now a teenager, for many years.

Margaret carried a dual diagnosis of Bipolar Disorder with manic episodes along with Alcohol Abuse and Dependency. Hospital records indicated that there was a family history of substance abuse by both parents and siblings. Margaret had lost contact with her family. She had lived “on the streets” or in psychiatric facilities for most of her adult life.

One of the first things that Margaret wanted me to know was that she “was not like the other homeless drunks.” She wanted me to know she had lived in a big white house overlooking the Bay in a small posh town known as a summer retreat for famous people. As she stuck out her arm in front of herself, she fanned her hand and wiggled spread fingers to make a point, “and, I had di-ah-mends…”

Whenever she was having a hard time, she would repeat the story to me with the same gestures and intonations. She wanted me to remember. It was her dream to get back to that point in her life. It was my goal to help her get as close as possible. She was discharged to a women’s transitional residential program with seven other women and plenty of support. The structure proved too much for Margaret. There were curfews, chores and according to Margaret “the staff was pushy and some of the other girls were too young or too sick.”

We started looking for safe alternative housing. It was the 1990s. Margaret’s only income was Supplemental Security Income and the minimum allowance of food stamps. Today she would probably get a gallon of milk and a dozen eggs for that amount. Without a housing subsidy, it was impossible for Margaret to afford even a room in one of the many rundown boarding room houses in the city. We applied for a rental assistance allowance through a special grant designed for downsizing the state hospitals. While we waited, Margaret’s boyfriend, Jean found a small attic apartment in an old triple decker.

Jean was supportive of Margaret’s treatment and personal goals. We were able to adjust the subsidy request to use at that apartment. With a place of her own, the primary thing on her mind was to see her son Shaun again. Margaret was able to open communication with Shaun and his father. Now she could tell his dad that she had a safe place for him to visit. Jean was able to borrow a car to meet her son for lunch near his home. It was the first time they had seen each other since he was a small boy. She was so excited. She bought a stylish blouse and slacks at the Salvation Army. For Shaun, she purchased a gift from a local department store, precursors to Target or Walmart. They tell me she looked fabulous. It was very stressful, but she managed to get through it without hospitalization or too much disruption in her life.

It was a year later when Shaun got his driver’s license and a car, that he was able to visit Margaret. From the moment she got the apartment, everything she did was with Shaun in mind. Now, her little boy was coming for Christmas!

Margaret and I would shop for her groceries and personal items at the beginning of each month when her Representative Payee would give her spending allowance according to her budget. Margaret had planned and budgeted for Shaun’s Christmas visit for months. She wanted to make sure she had enough for a Christmas tree. She was extra careful shopping because she also wanted some ingredients for a special dinner. After we secured her monthly staples, we were done, but with very little left for a Christmas tree.

Margaret wanted a real tree for Shaun. She didn’t want a dusty beat-up artificial one from a thrift store. We searched high and low on that cold New England winter day. Finally, in the back of a tree lot, Margaret spotted the perfect one. It was short and lopsided, but not too scraggly and at least one hundred times better than Charlie Brown’s. To Margaret, it looked like the one at Rockefeller Center. She negotiated and got it for eight dollars. She cried silent tears as we drove home.

At my next visit, I saw the lopsided little evergreen sitting in the corner glowing brightly from the lights and ornaments that Margaret had collected from around town – donation boxes, thrift stores, and friends. The little Christmas tree did look like it belonged in a big white house by the Bay with strings of “di-ah-mends” to light it up. Margaret had poured years of bottled up love for her son into decorating the tiny apartment for that visit. It was Margaret’s first Christmas in a long time as well, and sometimes she would become flooded with so many emotions. It was good to hear they had a lovely time.

Margaret was a loving mother who also happened to struggle with distressing symptoms of a major mental illness. I tip my hat to her this Mother’s Day wherever she may be.

Each one of us has our own evolution of life, and each one of us goes through different tests which are unique and challenging. But certain things are common. And we do learn things from each other’s experience. On a spiritual journey, we all have the same destination. A. R. Rahman (from BrainQuotes.com)

Please check out the links below for additional information for family supports as well. Many times family and friends want to help but don’t know how. There is also information about Peer support groups and peer mentoring programs. No one has to do this alone.

SAMSHA (Substance Abuse and Mental Health Service Administration) at https://www.samhsa.gov/

NAMI (National Alliance on Mental Illness (a grassroots organization run by families and consumers) https://www.nami.org/About-NAMI

Mental Health stories of courage and resilience Part 3

Y is for the true You inside

Welcome to part 3 of the Mental Health stories that are part of the memories I carry with me. This mini-series resulted from the April 2018 A to Z writing Challenge. If you’d like, you can go back to part 1 and start at the beginning. Again at the end of the post, I will add a couple of links to provide resources for additional information.

At some point, my life path crossed with those of the individuals that I write about this week. These are not stories of magic wands and happy endings but of audacity and survival. I may not know all the details of their lives, but I cherish the snapshots they left behind. They remind me that, at the core, we all have our “you,” our essence that makes us who we are. In these posts I will tell you about two women; their stories are very similar, but each one of us is unique in the way we face our challenges or our demons.

Della Mae and Margaret had a lot in common. I met both women when they were around middle-aged. They both were married once; both had children they did not raise. They had experienced multiple long-term hospitalizations in the wards of state mental hospitals in the 1960’s and 70s – before patient rights and deinstitutionalization. They both carried the dual diagnosis of Bipolar Disorder and Substance Abuse. Their Bipolar Disorder was with manic episodes, and their substance of choice was alcohol. Alcohol abuse is common among persons who try self-medicate and manage their symptoms without professional help; it’s socially acceptable, legal and at least initially slows the racing thoughts.

Della Mae was born and raised in the South. She met her husband shortly after high school while he was stationed at a military base near her hometown. They were married and moved North. Together they started a family and a business. She helped with the secretarial and administrative duties at the company for many years. Eventually, they were divorced; he had custody of the children – a boy and a child.

I met Della Mae as part of discharge planning from the state hospital. She was familiar with the system. She had been to various state-run hospitals since her first “break” decades ago. She didn’t talk about past; it was not necessary in order to make plans for the future. She was angry at herself and the world because she had gambled with life and lost it all – again. As she walked through the gray metal doors upon discharge, she squared her shoulders and held her head high carrying all her worldly possessions in one shopping bag.

Della Mae went to live in a small supported housing apartment with another woman, also making her way back to the community after a lengthy hospital stay. Staff was onsite but not in the unit. She started volunteering, eventually obtained a part-time job at a local non-profit and bought a used car. Because of her age, she was able to get on a waitlist for Affordable Housing for seniors. At first, she was reluctant. She did not want to be living with “old busybodies,” but soon realized age was an advantage because general subsidized housing vouchers had a ten-year waitlist. She had her own apartment in a little over a year.

Things were stable for Della Mae. She had not required a psychiatric hospitalization for several years. I was meeting with her less frequently. Her daughter Kara, now an adult, started coming over for visits. One day Della Mae called me to move up her appointment, she needed to talk. We went for coffee at a small quiet shop near her apartment because her daughter had stayed with her and was taking a nap.

As soon as we sat down, Della Mae told me she had started decreasing her medications. She had not told her doctor yet, but she had made up her mind. It was her right to refuse treatment. She explained that on her medication, she felt numb. Things were going on in her life and her daughter’s that merited some kind of reaction, but she could not feel a thing, not sadness, nor rage, not even joy at reuniting with her daughter.

Della Mae and I talked about the risks, but she knew all about it. This was not her first rodeo. We scheduled an appointment with her doctor and therapist to review her Safety and Crisis Plan to try to mitigate the risks. No, she didn’t want her daughter involved. We talked about that point of no return where nothing was going to stop the snowball effect in her life. Even though her history told a different story, she believed that if she remained sober, she could make it work. This was her life, and she was in charge.

As it turned out, her daughter had also been diagnosed with Bipolar Disorder. Della Mae’s rage and sadness were from not being able to protect her daughter from that. Kara had left her father’s house to stay with Della Mae, but that jeopardized the subsidy at the elder housing complex. Della Mae could not ask her daughter to leave, and that’s where the snowball started for both of them. The stress and conflict around the housing situation proved to be what tipped the scale. Eventually, Kara was also referred for supportive community services, and they both began to restore what they had lost.

There are plenty of people who are able to rebuild their lives without community supports, but I am telling the stories from my experience. I found that in the absence of a robust natural support system these dedicated professionals have helped countless individuals fight stigma and get back to a life worth living.

SAMSHA (Substance Abuse and Mental Health Service Administration) at https://www.samhsa.gov/
NAMI (National Alliance on Mental Illness (a grassroots organization run by families and consumers) https://www.nami.org/About-NAMI

Mental Health stories of courage and resilience Part 2

Y is for the true You inside

A few days ago, while participating in the April 2018 A to Z challenge, I wrote a post about The fun side of living on the edge of reality. It was about the silliness of letting my imagination run away. I imagine it’s a trait common among those of us who like to write. My theme for the challenge was to tell the stories that marked my simple life; the memories of those moments are in my mind like snapshots. After I wrote the post, I felt the need write the stories of those who struggle with harsh realities, yet find a reason to get up every morning and do their best to make it a great day. For the next few days, in honor of Mental Health Awareness Month in May, I am telling their stories. Once again, at the end of the post, I will put links to resources for additional information.

Imagine

Joy of graduation — Imagine you are a high school senior or college freshman

Imagine for a moment that you are a high school senior or a freshman in college. You ’ve been a straight A student, involved in sports programs and volunteering. You’ve done everything right. Just last month you were told that it’s a great thing to have your whole life ahead of you. The world is your oyster, the sky is the limit, and yet here you are, sitting in with your parents in a psychiatric ward waiting to talk to your hospital team about discharge planning. You have been handed a diagnosis something like Paranoid Schizophrenia or Bipolar Disorder. You’re a smart kid, intellectually you understand the information, but it doesn’t make sense. You can’t return to school; you need extended treatment in an outpatient day program. You may need to pack your things and move out of your dorm, mid-semester to a therapeutic residential program in your community. You don’t remember how you got here. You’ve heard the stories, you’ve been given a diagnosis, but you can’t believe this is happening to you.

Mental health services and the Government

For the most part, I loved my job. I found it meaningful. I believe it addressed a need in our community especially for the families and individuals we served. Even though we were just another branch of government, I felt we were doing great work moving forward to try new ideas in the interest of improving the system for our clients. As it happens sometimes, I was promoted to long days of sitting behind a desk with a mountain of paperwork while trying to interact with the bureaucracy. I missed being out in the field, but I was fortunate enough to work with a team of intelligent, well trained and compassionate professionals who were driven to provide the best services for their clients on the road to recovery. Together, in weekly sessions, we did a lot of brainstorming and problem solving to address the individual needs of the clients.

During this particular time, our emphasis was to work towards helping clients break the revolving-door cycle. In particular, we had begun paying close attention to the unique issues of the transitional age and young adult population. These individuals ranged in age from 16 to 24 years old. In some cases, we were able to expand age limitations to 30 years old. We sponsored supportive education and employment initiatives, peer mentoring and independent living in the least restrictive settings. We wanted to offer user-friendly alternatives to interrupted lives. That is how I had come to know about Mike.

Mike –carrying the stigma of an ex-patient

Mike had come to us after his second or third psychiatric hospitalization at a local hospital. He was in his late 20’s, almost out of age range for our new menu of services. He was bright, hardworking but was having a hard time adjusting to his life as an ex-patient of a mental hospital mainly because of anxiety about the stigma it carries. Who was he now? He had been living with his uncle and family for many years. Upon discharge had returned to work at the family business but symptoms of his anxiety, OCD, and depressed mood caused persistent and unrealistic worry. At times increase in symptoms became full panic attacks and physical immobility. His case manager thought he would flourish with a young adult support system and advocated strongly for a spot.

I met Mike for the first time at the office when he came looking for his case manager who was out on appointments. He asked to speak to me because he felt that being with anyone who understood his struggles would help to lessen his anxiety during this episode. He had just had a falling out with his cousin who was supervising his work on a project. His cousin felt he was too slow and taking too long to get the job done. He was feeling overwhelmed and worried what his family would think. He worried that the incident would be a setback in his recovery plan. We reviewed his Recovery Plan and the Safety Plan that he had worked on with his therapist and case manager for these very same situations.

“You know what I wish?”

He told me he felt he was on shaky ground with his family since his hospitalization. He said he knew they saw him differently. “They think I’m lazy; they don’t realize what a struggle it is for me to get up and face the day each morning.” He didn’t feel he could address it because he believed they would mock him. Whether it was true or not, I can’t say, but that was his perception. We talked about how unrealistic expectations and perceptions could present a barrier to recovery.

He was sad and angry. On the one hand, he explained people see a good looking young man who appeared smart, secure, physically fit and “put together” as if there was nothing wrong. But the reality he said is that he can’t manage his fears and anxiety without support and medications. He sat quietly for a moment; shoulders slumped as he stared at his hands resting on the desk. He took a deep breath and with a surge of energy, leaned in on the desk to look me straight in the face. “You know what I wish sometimes? I wish that I would have lost a leg or an arm or have some form of disfigurement in my face or body. I wish that I looked disabled. Then people would be more empathetic and realize that I am living with something catastrophic.”

It wasn’t self-pity, he was stating the obvious. I had heard it before verbalized in different ways. Anxiety disorder and depression are sometimes referred to as a silent epidemic. However, in our society, it is often misunderstood, and its effects minimized, precisely because patients do not appear as if there is something wrong with them. They don’t fit the stereotype of “mental patient.”

Mike did eventually move out of the family home and into his own apartment with minimal supports. He enrolled at the local community college and began to think about becoming a peer mentor. The road to recovery with mental health issues varies for each person, as life does for all of us in general. Sometimes for every step forward, there are two steps backward, but the key is to keep going.

If you would like more information about mental health services in your area, please check out these links below.

SAMSHA (Substance Abuse and Mental Health Service Administration) at https://www.samhsa.gov/

NAMI (National Alliance on Mental Illness (a grassroots organization run by families and consumers) https://www.nami.org/About-NAMI

Mental Health Stories of courage and resilience Part 1

A to Z challenge and the letter Y

A few days ago I wrote a whimsical post about the fun side of living on the edge of reality. As I wrote that post, I made a promise to myself and to the ghosts of past clients, that I would tell their stories of courage, resilience, and survival. I knew just where to put it. I was working on the April 2018 A to Z Challenge and I worked on the story while waiting for the letter “Y” because Y is for The You Inside and I haven’t forgotten. Because these are the stories of real people, I wanted to take time and be true to them. I will post each story as a different part this week. I also decided to hold the post a few days because, since 1949, May has been Mental Health Awareness Month. This year Mental Health Awareness Week is May 14-20, 2018.

Case Manager Vs. Life Coach

In a previous life, I was hired by the Department of Mental Health to join an army of professionals and para-professionals. We were tasked with providing community services for persons with recurring and persistent mental illness as the push for deinstitutionalization continued from the previous decade. New medications were addressing the symptoms of their illness and we were going to help them return to their communities to find a “life worth living”. I was a Case Manager. Actually, I considered myself more of a Life Coach; I was ahead of my time. I can fill my days simply writing the stories of the men and women I’ve met. Instead, I will tell you of the snapshots that jump from my memory when I see the news or hear the debate about affordable healthcare.

For some reason, she wanted to die.

Time and again, I remember the day one of “the new girls” ran to our apartment crying and looking for my mother. They needed help because their mother had just eaten some rat poison. For some reason, she wanted to die. Days later, I accompanied my mother to visit the neighbor in the psychiatric ward. I didn’t remember seeing her before that day; she looked like death warmed over. We caught a glimpse of others on the ward; they looked the same, pale gray figures, walking in circles. It was scary. I was a just beginning my teens, it was the late 1960s.

Anne

I met Anne when she was in her late thirties. She had been a clerk for IRS when she had her first major “break down”. She had become angry and the police took her away. She was a tall, woman with a large build. Her short blonde hair was starting to turn gray and she glared at me with powder blue eyes. She explained that she had been angry because no one believed her story that the Mayor had raped her when she was a child playing with his daughter. We worked together for several years after that meeting and I learned her perpetual glare was more a sign of fear than defiance. She lived in fear, never knowing when “the cops would show up and haul her away for no reason.”

It was the mid-1980s. She had a long history of psychiatric hospitalizations precipitated by psychotic thinking and consequent irrational, uncontrollable anger; this was common jargon in hospital records back then. Her mother couldn’t confirm her rape story. No one bothered to corroborate it because it was considered a symptom of her illness. She carried the diagnosis of Paranoid Schizophrenia. She told me she had stopped her meds often because she didn’t like how they made her feel; she felt no need to elaborate. Anne had been discharged on an injectable medication to assure compliance. She agreed to move into a group home to increase her independent living skills. It was my job to get her an apartment in the community and provide support to get her out of the revolving door that kept her in and out of hospitals. Needless to say that it all sounded so much better on paper.

In our society, social drinking of alcohol is quite acceptable. Some people say it takes the edge off and they can relax. They feel more social. Unfortunately, we all know folks who are better off when they don’t drink at all. One particular year, things were going well for Anne. She had her own apartment in a nice part of town and had made friends with some neighbors who were not associated with her life as an ex-patient. Sometimes, they would all go out to listen to a band and have a good time.

Y is for the true You inside

Anne and I would talk about how to stay safe in the city and about the risks associated with mixing alcohol and meds especially an injectable medication. Part of my job, of course, was to point out all she had achieved while on the prescribed medication. I don’t remember the exact conversation or the words I used but I do remember something I said caused her to stand up and stared down at me with her powder blue eyes, holding back her tears “you don’t understand do you? You never will. Those medications take away my YOU. THAT’s who I really am. Who I’ve been from the day I was born. It’s my dreams, who I want to be. It’s MY reality. The one on the medications, that’s not me. The one everyone says is doing soo well”, she added with a touch of sarcasm, “She is a product of the meds.”

Irrational thinking starting to sound rational

She went on to ask questions like who determines what’s irrational. Who determines what right and wrong, what is true or not? And then she started telling me that no one knows that Bill Clinton comes to visit her and loves her. She explained that they had to let Hillary stand next to Bill in her place in the news because she looks better for the TV cameras. A part of me could rationally understand what she was saying about her dreams and her meds. I can’t begin to explain, however, what it feels like to watch someone lose their grasp on reality, know where it’s heading and feel powerless to stop it. It was her right to drink socially as it was her right to refuse medication and treatment. I’ll try to touch on the laws surrounding this in one of my other posts.
It was months before she ended up in the hospital again. Yes, the police were involved.

It was another few months before she was ready to go home again. Fortunately, we were able to save her apartment and she didn’t have to start at the beginning again, even so, it wasn’t easy to return to that place. Eventually, we found another apartment and she found another group of friends. I don’t know if she ever made peace with her You and her medications, but she certainly gave me an education that I could never repay.

Resources

You can find many more stories, resources to find services or general information for consumers and their families at the following sites:
SAMSHA (Substance Abuse and Mental Health Service Administration) at https://www.samhsa.gov/
NAMI (National Alliance on Mental Illness (a grassroots organization run by families and consumers) https://www.nami.org/About-NAMI

Please look out for my other posts related to this topic.

eXes and Woes

A to Z Challenge Letter X

eXes and Woes

Clotilde Delsapo looked at the caller I.D. on her cell phone. She didn’t usually pick-up when she didn’t recognize the number, but the area code was from her old hometown, so she did. “Hey, hellooo,” said the playful voice on the other end. “Hi, what’s up?” she responded tentatively. She knew who it was. The call was unexpected, but somehow she was not surprised. It had been about three years since their last conversation. At that time Laurence Olivier Madioti was getting ready to settle down again. It was always the same story, and she’d come to understand this was going to be the last phone call – for a while. “I’ve learned so much from the past. She and I have so much in common. She has wonderful qualities. I’ve good a good feeling about this.” To which Clotilde would politely reply, “Great news; All the best. Really hope it works out this time.”

Now, he was rambling about how difficult it had been to find Clotilde’s phone number again. He wanted her new address to send his recent book. He was looking to get her feedback. “It’s different from what I’ve written before. I think you’ll like it.” Clotilde hesitated but shrugged, sure why not she thought, and she answered without emotion. “1300 Mockingbird Road, Paradise, Florida.” To which he responded. “Great, I’m here for a graduation, but I’ll send it as soon as I get back.” After a bit more mindless chatter, he added that he was single again. “Let’s just say we had irreconcilable differences.” Clotilde didn’t bother to feign shock but replied. “Wow, too bad. Sorry to hear it.”

Today Laurence O. Madioti was calling after a third long-term relationship fell apart. It had been 13 years since they had gone their separate ways but each time a relationship had ended, he called with a similar story. “I think I made a mistake.” Each time it started to sound as if he had regretted that their liaison ended the way it did. She listened carefully, but the words she waited to hear didn’t come. After a while, they were just friends again, former colleagues shooting the breeze.

A couple of weeks later he had called her again to let her know he was heading home at the end of the week. “Why don’t you pack a bag and come with me for a bit. We always have a great time together.” She shook her head and laughed at him. “Some things never change” she gently chided. “I didn’t mean it like that. You sound like you need a vacation. You can stay at the guest house. There is a pool, and it’s walking distance to the beach.” She didn’t know why she didn’t just say no, that’s a bad idea. Why was she always careful not to hurt his feelings? Instead, she explained that she couldn’t leave now. “Sounds like a great place though.” She would let him know when she could visit; after all, they were still “friends.”

She didn’t know why they remained “friends” for all these years. Maybe it was something about forgiving those that wronged you, not because they deserve it, but because you deserve peace. It seemed to have worked. She was at peace, and hindsight gave her a better understanding of their past history.

They had met over thirty years ago when they worked at Allen, Bradford, and Jones. Together they led an up-and-coming team breaking barriers and maximizing productivity, making it one of the most successful teams in the company’s history. In the midst of success, as they say at Disney, there occurred a Tale as old as time, True as it can be, Barely even friends, Then somebody bends, Unexpectedly… Neither one remembered precisely when or why things changed between them, but they did. It became their secret for many years after.

Some time ago, Clotilde realized that she had finally reached a place where it didn’t hurt anymore. She accepted what she had known all along but had refused to let it surface to her conscious thoughts. She had misinterpreted that friendly relationship. It was as simple as that. She was able to close that chapter and look back at the story as if it were a bad rom-com. She felt relief, her spirit was light, and she was at peace with herself and the world.

Laurence O. was a great guy as far as “friends” go. He was giving, supportive and loyal. A person knew he could be counted on to always have your back in a troubling situation. He was smart, funny, articulate and cultured. He spoke four languages fluently, had traveled extensively and could recite poems and sonnets by heart. He wasn’t handsome in the usual way, but there was an attractive, confident air about him. Women and men both admired him. They considered themselves lucky to be counted among his friends.

One could also say that Laurence Olivier Madioti was an incurable romantic in a temperamental way. He was the personification of the ads found in the personals. He loved walking on a moonlit beach, and dinners by candlelight accompanied with good music at a fine restaurant. He was also an excellent cook and enjoyed entertaining at his place. He loved picnics, red roses, and fruity red wine. He was an expert at helping to release the tensions of the day whether with a shoulder massage or cuddling on the couch watching a silly romantic comedy.

Unfortunately, although he said he longed for a stable relationship, Laurence Madioti had been unable to transition to happily-ever-after. After the second post-break-up call, Clotilde had told him that it appeared that he was in love with the idea of LOVE, the conquest, and romance. He had studied the novels, memorized the poems and watched romantic movies. Others would say that once the thrill of the chase was gone and things started to feel mundane, Laurence would find the nearest exit. For all his intelligence and insight, a part of him expected that once he found “the one,” the stars would align and life would be perfect for all eternity.

In the weeks that followed the book’s arrival, Laurence O. continued to call or email regularly. They would talk about the book, politics, and weather. They didn’t take that walk down memory lane. Clotilde could hear the uncertainty in his conversations, sometimes overstepping the boundaries of friendship. She found it sad that sometimes it was as if they were strangers with very little in common after all these years. She wondered if he felt the same. She had thought to bring it up because she didn’t want to continue this shallow friendship.

Clotilde wished they were face to face. At some point, she began to feel awkward about the phone conversations or video calls. It was not the same something was lacking. She didn’t know what but could not speak her mind. She had decided to go to visit him to end this semblance of friendship but then thought better of it. What if she felt different when she saw him in person, after having him in her arms from the obligatory hug between friends? What if she got lost in his the dark pools in his eyes or felt faint from the smell of his skin next to hers? What if she was flooded with a rush of all the emotions she had managed to put away for so long. She didn’t want to muddy the waters. She would wait. If history repeats itself, he would soon be on the mend from the broken heart and would get too busy to call.

And so it was. The calls stopped abruptly, and after several weeks, Clotilde sent an email to confirm her hunch. “Yes, he said sheepishly. We are in the beginning stages, but I have a good feeling about this.” Clotilde politely responded “Great news; All the best. Really hope it works out this time.”

Willy-Nilly and Wocka-Wocka Letter W

If you’ve read my blog before, you know I am a Beginning Blogger. I started this blog Willy-Nilly, without direction or planning; haphazardly. I jumped into this A to Z Challenge without much understanding of the process, and in trying to meet the daily deadlines, I feel like my thoughts are all over the place. I am looking forward to completing this challenge, but I must admit, I’m proud that I’ve stayed in this long. I think the most difficult aspect is that I chose a very broad theme. Each day I wake up feeling like I’m on Sesame Street looking for the Letter of the Day. Then I rummage through those “snapshots” in my memory files to find a match.

This is my second time starting a blog but alas- my skills remain at entry level. Since I have a bit more time these days, I’ve also decided to dedicate some energy to setting up my page and getting to know what’s behind the screen. That’s where Fozzie Bear’s Wocka, Wocka comes in. Today I spent most of the morning in a cyber backroom, chatting with one of the Happiness Engineers at WordPress. Chatting is difficult when I don’t know the lingo, but the person on the other end was quite patient and answered all my questions. Most importantly the HE straightened out my domain issues which will make my blog easier to find and my behind the screen dashboard easier to manage.

At the end of the day, I feel a bit like Fozzie Bear. He tries so hard that his ineptness is endearing and we are all cheering for him waiting for the day he gets it right. Well, I don’t have a fan base yet, but my family has my back. I appreciate them for that. This song is exactly how I’ve been feeling. Dancing in the Dark.

Enjoy it with me.

Voting- A to Z challenge letter V

I was struggling with whether or not to use today’s letter “V” to broach the subject of Voting. Elections or anything remotely in the political arena puts me over the edge. It’s definitely an area that I tend to “self-censor” for the benefit of those around me. I noticed a couple of folks did use the word for the AtoZ challenge and so having participated in a rather animated meeting the other night; I decided to jump in and talk about Voting.

Full disclosure – sometimes I want to shake people who show such apathy towards the election process. I can’t wrap my head around it. It’s sad to me that people don’t realize what a privilege it is to live in a country where each citizen is entitled to one vote – to have a say in how the country is run and how funds are dispersed for services. Voting does matter!

Originally it was only white, male landowners who were able to vote on the laws of the land. Through centuries of strife and struggles women, Native Americans, former slaves and other foreign-born were granted the all rights of citizenship, including the right to vote. This privilege was not handed to us but earned with blood, sweat, and tears -literally. If we the people don’t use our power to have a voice, the elected officials can take it upon themselves to make decisions based on what they think is the best interest of their constituents. We have seen referendums and laws shot down or put away because there hasn’t been enough interest from the general public. We have seen others put in place before anyone could appreciate the detrimental impact on the nation.

Don’t get me wrong; I get it. I happen to like this stuff, and yet I too get tired of the rhetoric. I like the research, the arguments, and hearing the candidates’ plans to make things better. I like studying the ins and outs of new proposals. I don’t listen to just one side. To know my choices, I research both viewpoints as much as can. I have voted for a candidate based on past performance regardless of party affiliation. I have become quite active and passionate about some issues, but there are times when even I’ve had enough and want it over. I think in our era of social media and cable networks, all the input can be overwhelming.

What I hear most from people is that it doesn’t matter because “they” are all the same. “They” are just out for their self-interests, out for the money. Despite what we have seen recently, I can tell you “they” are not all the same. Some have sought office with genuine intention to serve rightfully but then lose their vision fighting the uphill battle caught up in the bureaucracy. I have also seen men and women in office fight for their constituents as if they were fighting for their own family members. I do believe we play a role in not letting our representatives get complacent or stagnant. They need our feedback, our letters, our phone calls and our attendance at town meetings to help them have the pulse on what is going on back home.

I can sit here and tell you that one party is better than another but I ask you instead to love your country enough to take a stand for democracy and vote. Be responsible. I can’t stress enough to look beyond the headlines and the talking points in political ads. Knowledge takes away the fear factor. Don’t just “share” trash on Facebook, Twitter or Instagram. Research what you are reposting – especially if it sounds absurd or preposterous –even if it is sympathetic to your beliefs. Let’s not have a repeat of false information spread throughout the web as we’ve had in recent years. There are plenty of sites where you can do a quick fact check. Here are a few to get you started: Fact Checker, Politifact, Snopes, The Sunlight Foundation. There are others but these have been widely recognized to use neutral language to prevent even an appearance of bias.

In closing, I ask you to check your local voting lists. Make sure you are still on the list, and all your vital information is current. Maybe you were dropped for not voting. If you need to register, you can do it online at https://www.usa.gov/register-to-vote.
Know your candidates and ballot issues. If you can’t make a meeting with candidates, go to their website to get the details of their platform. If they have been in public service before, you can research their voting record at such sites as https://votesmart.org/; https://www.headcount.org/issues-and-candidates/; https://www.usa.gov/voter-research.
There will be plenty of information online and in handouts all over your city as we get closer to November.

Don’t take for granted what our service men and women have fought for around the world. Don’t just wave your flag on Memorial Day or the Fourth of July – make it count in November. We are part of an already great nation but WE THE PEOPLE need to step-it-up. We can do this!

Upside Down – A to Z challenge letter U

What happens when your world is upside down, and you feel like you are holding on to the edge with your fingertips? How do you manage to get back on top or at least get a better grip?

The other day I received a message from a young man who I hadn’t spoken to in about 30 years. The last time I saw him, he was 16 or 17, and I was his Youth Leader in church. Some of you may be doing the math and maybe don’t consider this a young man, but time and memory are funny that way. Your memory keeps those snapshots of the way it was, and in this situation, we both found ourselves the way we were.

He was never your typical Choir Boy or Boy Scout. In truth, he was the proverbial black sheep of his family, but he had a good heart, and one could tell he just couldn’t get out of his own way. Although his mother was a leader in our church, her son was out of reach to her and his immediate family. The rest of us tried to bridge that gap during those turbulent years and so when he reached out, I was there for him- his youth leader again.

He got straight to the point. Since I had last seen him, he had continued with his self-reported “craziness” for several years but when he met someone with “good sense”; he fell in love, and his life began to turn around. They’ve been married for twenty plus years; have three lovely children-already finishing college. He went back to church for a while, bought the house with the picket fence, the furnishings, the cars and the dog. A few months ago, without warning, his wife announced that she needed space and wanted to separate for an indefinite period. He felt he couldn’t go on without her; everything he’d accomplished had been for her. I reminded him that this was what he had always wanted and he achieved it. Not just for her, but for himself.

I listened carefully with my third ear, trying to hear what was actually going on. I don’t make assumptions, I don’t know his wife, and although I believe our core stays the same, the chances are that so much time has passed, that I don’t truly know who this young man has become. In my experience, things never come out of the blue.

When he was done, I asked a few questions. Some he wasn’t ready to answer, but he listened. He was briefly able to step back and recognize some of the things I was talking about. Naturally, when it was too painful, he deflected, and we moved on. Put in on the back burner, I told him, and I shared some of what has helped me in times of trouble or distress. The trick to survival is using your tools.

• Take care of yourself. Stay healthy. Get out and move – exercise. Keep your mind clear and grounded with mediation or prayer or both. If you know substances like alcohol or drugs are a trigger, don’t reach for that as your life saver. The chances are that you’ll go under to the dark side quicker.
• Be open to self-reflection but don’t beat yourself up. We all make mistakes, just be honest with yourself. Are you doing the best you can? Is this your best self?
• Try to walk in the shoes of the other person but don’t judge. Don’t take it personally. Each one of us is dealing with our own issues, battle scars, and fears. Yes, even your life partner may have difficulties communicating some things. Don’t push. Be ready to accept and respect the other person’s decision.
• Remember each day is a clean slate. We can make it what we want. Eleanor Roosevelt, one of my favorites said “With the new day comes new strength and new thoughts.” from Brainyquote.com

It happens to all of us. How do you get back on top when your world is upside down?

Twinkle little star. A to Z Challenge

Windows in heaven — Perhaps they are not stars, but rather windows in Heaven where the love of those who went ahead pours through and shines upon us…

Twinkle, twinkle little star, how I wonder what you are. Up above the world so high, like a diamond in the sky… or as my fifteen-month granddaughter sings it “kakle, kakle, sahh, ahh, ahh.” Don’t judge. Her mother grew up in New England where people say “Pahk yah, cahs in Hahvahd Yahd.” It could be she’s already picking up the accent her mother brought to their new home fifteen hundred miles away. The point is that my granddaughter loves that song. Every time I go to visit, almost as soon as I walk in through the door, she brings her storybook with the big yellow star on the cover. We put the world on “pause”, she proceeds to climb on my lap and rests her little head on my chest. We cuddle to read it- at least three times before we can move on. I don’t mind. I love it!

I can’t say that she’s made a connection between the star in the book and the immense collection of twinkling diamonds in the night sky outside her window. She rarely stays up past 7:30 anyway. I’m sure when she’s old enough; she will be as mesmerized by the vast infinity of bright lights in the night sky as I am. How can she not?

The first time I was aware of the overwhelming expansion of the stars in the black velvet sky, I was breathless. To understand the extent of my reaction, you have to remember that I am a “city kid.” I grew up at a time when folks were talking about smog, pollution and how to make the air better in the large cities across the country. I don’t lie when I tell you that I never imagined the night sky could be so much more amazing than a visit to the planetarium. I was about 16. It was during a Winter Youth Retreat in the Pocono Mountains in Pennsylvania, the night was crisp and not a cloud in the sky. It was magical.

I’ve lived just outside city limits since then, and whenever there is a night clear enough to see the sky full of stars, I swear I feel a little tipsy. It still takes my breath away. In one of those moments of stretching reality through imagination, I promised my kids that when I’m gone from this world, I’ll try to find a way to still keep looking out for them. Maybe I’ll be looking out from behind one of those stars. In our family, many of our loved ones have left this earth before we were ready to say “Goodbye.” I love that quote that suggests that stars are windows in the sky for our loved ones to see us. Here Anne Murray’s version of the same idea. https://www.youtube.com/watch?v=XbZBZC01_sQ

I do believe that our loved ones have the opportunity to become angels or spirit guides as some faith practices believe. A teacher once said it might take some longer than others, but that’s why we pray for the deceased souls and offer services. I find that comforting, maybe that’s why I will always love a starry, starry night. It lights my soul and gives me hope.

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